Coinciding with the Rare Disease Day 2015 on February 28, the Parc Científic de Barcelona (PCB) hosts the exhibition Menos Raras at the central corridor of the Torres building. The exhibition has been organized by the Associació Catalana de Comunicació Científica (ACCC) and supported by the CNAG, the Centro de Investigación Biomédica en Red de Enfermedades Raras (CIBERER) and the PCB.
Menos Raras presents the research in rare diseases carried out by Spanish research groups often in co-operation with other international research groups. Through specific cases such as Lowe’s, Wolfram’s or Williams syndrome, the exhibition will show to the audience some of the most outstanding research in this field.
The exhibition includes a panel explaining generally the research on rare diseases performed at the CNAG, and a video in which Sergi Beltran (CNAG Bioinformatics Analysis Group Leader) talks about projects focused on rare diseases in which the CNAG participates.
The European Union considers diseases to be rare when they affect not more than 1 per 2 000 persons. If these diseases are rare, patients are numerous as there are some 7 000 known rare diseases (Source: www.orpha.net). Most rare diseases are genetic diseases, implying that biomedical research in this field is relevant in the search for therapies and drugs for treatment.
Menos Raras will stay at the PCB until the end of March.